Monday, June 23rd, 2025 10:28 am
Had some Prince of Wales tea. I am marking time till I hear from L. about when we're getting together.
Sunday, June 22nd, 2025 10:58 am
Some moron pulled the fire alarm three times after I went swimming. If I were really paranoid I'd think they were trying to fuck with me.
Sunday, June 22nd, 2025 04:15 pm
Mereth Aderthad 2025 Interview with Tang Wen Xi by Dawn. Featured artist for "Kidnap Fam and the living Legendarium"

Few episodes within the legendarium inspire the tormented emotions as the third kinslaying and the aftermath between Maedhros, Maglor, Elrond, and Elros. The featured artist for polutropos' Mereth Aderthad 2025 presentation "'Kidnap Fam' and the Living Legendarium," Tang Wen Xi creates artwork, including martial scenes, with a bold, vibrant style that often seems to leap and move within the page. Dawn recently spoke to Tang Wen Xi about his inspirations within the legendarium and how he creates his one-of-a-kind art.

You can read Dawn's interview with Tang Wen Xi here.


Saturday, June 21st, 2025 05:50 pm
Not much going on here. I went to the Berkeley end of Telegraph ave earlier today but not much was going on there either.
Saturday, June 21st, 2025 03:04 pm
A few words from [personal profile] clauderainsrm:

Welcome to the long dark teatime of your soul, a place that will haunt your nightmares and amuse your hopes and dreams until they realize that we know exactly where they are hiding, but they are safe there - Idol isn’t going to take them out (kill!), at least not for now.

No guarantees on later though. For the moment it’s only your nightmares who are in danger. Because I am the only nightmare in your life. All of the others need to cede ground and acknowledge when they are in the presence of a professional!!!

It’s that time in Week 1 where I say a few words and post a poll.

So - here are the words:
One of you will be randomly selected to receive an email. So be checking your Inbox. If you don’t receive one, then the wheel didn’t pick you. For now. Once you receive it, you will have a couple choices to make. Your game may be decided on what you choose, and without any doubt other people’s games definitely will be impacted by it as well.

Nothing quite like a vague sword hanging over everyone’s head to get things started off right!!!

So now, some other words - Thank you to everyone who has come out. It means a lot to me for you to be here. It’s a small group, but it promises to be a fun one, filled with weeks of great writing! Probably even more “cursing my name” sessions, but also great writing!

We aere off to a solid start with Week 1 and I want to encourage everyone, especially those new here to do the 4 important things over the next few days.

Read. Part of the fun of this whole thing is getting to read other people’s work. Do it!!
Comment on their entries. Everyone loves feedback! You like it. I like it. I think it’s fair to say that no one wants their work to just go out into a vacuum. Give them some love!
Vote for your favorites!!! You can cast votes for as many (or few) entries as you want. Yes, for participants you CAN vote for yourself. Honestly, if you’re not vouching for you, why would someone else? But I know people feel differently on the subject, so I’ll just say you can if you want.
Tell other people to do these things. SPREAD THE WORD! That’s the only way this thing keeps going. We’ve kept Idol going for 19 years with just word of mouth, friends telling friends about it! It’s your turn to be the one to tell people about it! They don’t need to participate to read, comment or vote!

All of this said, there will be (spins wheel) 1 contestant leaving us this week! (the options were 1-3)

The contestant with the fewest votes will be sent to the Dungeon of Chaos to rot for the rest of eternity. (or at least until the wheel gives them another shot)

The poll closes Wednesday June 25th at 9pm ET.

Good luck to everyone!
Note: Fausts_dreams link should be https://fausts-dream.dreamwidth.org/6729.html - my apologies. Obviously this week he is safe as a result of my mistake.

Poll #33276 ’Wheel
Open to: Registered Users, detailed results viewable to: Just the Poll Creator, participants: 33

Vote For Your Favorites!

adoptedwriter's entry
7 (21.2%)

adore's entry
11 (33.3%)

alycewilson's BYE WEEK - Votes Do Not Count
3 (9.1%)

autumn_wind's entry
9 (27.3%)

bleodswean's entry
16 (48.5%)

drippedonpaper's entry
12 (36.4%)

eeyore_grrl's entry
14 (42.4%)

erulissedances's entry
13 (39.4%)

fausts_dream's entry
13 (39.4%)

flipflop_diva's entry
16 (48.5%)

garnigal's entry
6 (18.2%)

gunwithoutmusic's entry
8 (24.2%)

hafnia's entry
13 (39.4%)

halfshellvenus's entry
12 (36.4%)

i0ne's BYE WEEK - Votes Do Not Count
3 (9.1%)

impoetry's BYE WEEK - Votes Do Not Count
3 (9.1%)

inkstainedfingertips's BYE WEEK - Votes Do Not Count
3 (9.1%)

kizzy's entry
9 (27.3%)

krispykritter's entry
10 (30.3%)

legalpad819's entry
9 (27.3%)

marjorica's entry
12 (36.4%)

matsushima's BYE WEEK - Votes Do Not Count
3 (9.1%)

muchtooarrogant's entry
9 (27.3%)

murielle's entry
10 (30.3%)

oxymoron67's BYE WEEK - Votes Do Not Count
3 (9.1%)

rayaso's entry
15 (45.5%)

roina_arwen's entry
10 (30.3%)

serpentinejacaranda's entry
7 (21.2%)

simplyn2deep's entry
12 (36.4%)

static_abyss's entry
10 (30.3%)

swirlsofpurple's BYE WEEK - Votes Do Not Count
3 (9.1%)

talonkarrde's BYE WEEK - Votes Do Not Count
3 (9.1%)

tonithegreat's entry
10 (30.3%)

used_songs's entry
10 (30.3%)

vik_thor's entry
5 (15.2%)

wolfden's entry
12 (36.4%)

xeena's entry
15 (45.5%)

Saturday, June 21st, 2025 10:32 am
Lara was lonely. Desperately lonely )


This was written for the new season of [community profile] therealljidol, Wheel of Chaos! If you liked my entry, please consider voting for me or any of the other amazing contestants. You can find all the entries here. Looking for the voting post on Saturday night!
Saturday, June 21st, 2025 08:26 am
silence rang out on the day
that we should have spoken
but we thought it would be better
than trying to un-ring the bell

     where in the world are you taking me? i asked, breathless. you didn't respond; you like to keep me guessing. or at least that's how it seems from my perspective while i wonder how it seems from yours. when we reached the pinnacle, i found myself too awestruck to question anymore. the world opened up, all greens and browns and blues, and i was there with you. the silence embraced me, a warm blanket that was comfortable to the point of suffocation.
     i broke it, as i am wont to do, with a joke about the view, with a smile and a wink in your direction. as if i could not let myself be comfortable there, even for a moment.

and why should i be comfortable
when we are what we are and
when we're doing what we're doing
why shouldn't i be afraid of

     i never did find out exactly when it was that you fell in love with me, if you did, since i never found that out, either. you told me a few times, but i guess i had a hard time believing it. it doesn't really make sense, after all, this thing between us. but the pull you have over me—it's incredible. i think i do that to you, too, but i just think. too much thinking without any knowing.
     we moved away from the peak, our feet crunching against old leaves that lazily fell to the ground in colder months, their trees shaking them off with the grace of a wet dog, renewing themselves. it feels different from the hair that falls to the bathroom floor when i shave my head, but i can't pinpoint why. maybe if i could, i would find that renewal. as it stood, i just followed you along the path you were making.

what are we becoming as we
slink silently to the shore
plant our feet in the water
and will ourselves to grow

     at its apex, i fell for you, and at its nadir, i second-guessed. i let myself embrace the silence between us, depressed the need to fill it up with words. i reflected myself in the water and saw you there, a distorted image that was almost wrong, but not wrong enough to give me the pause i needed. just wrong enough to put a question in my mind, words that my mouth would never form.
     it wasn't the first time we met, and it wasn't the last, but it sticks in my mind like used chewing gum clings to old carpet fibers. and it stays there as my thoughts race, trampling it bit by bit until it is a stain, an unremovable bit of miscellany like so many others. some days, i should very much like to cut that square from my mind and replace it with a fresh piece, ignoring the incongruity; it would fade in time to match the rest.

we are alike in so many ways
i am drawn to the similarities
and fascinated by the differences
you said we make a good team

     when you asked me to run away with you, to put aside everything else that i had worked for, to start a new life with you in another place, i didn't have to think. i had been, instead, waiting for you to ask. the ease with which i shed my skin came as a shock to me, but i could never tell you no when your thoughts met mine. maybe i should have. maybe where in the world are you taking me should have fallen from my lips like it did on the mountain.
     but I fear that all i've ever wanted was quality time with you.
Friday, June 20th, 2025 06:45 pm
The E Train
Idol Wheel Of Chaos | Week 1 | 7 x 100 words
Quality

x-x-x-x-x

Queenie
"Can't carry the world, can't bury the world," her mama used to say, but somehow Queenie was still trying.

With her daughter going to prison, there'd be two more mouths to feed. Queenie was headed to Brooklyn, where the food pantries were supposed to be better. She'd never used them before, but a secretary's salary only stretched so far.

Where would her grandbabies sleep? Her own kids already used the sofa. Guess she'd have to put them in her bed, at least for now. Anything but foster care.

Queenie couldn't protect her daughter anymore, but she'd keep her children safe.


Umesh
Umesh wasn't nervous yet. He was on his way to the airport, to fly home and begin the process of choosing a bride.

He wasn't sure he was ready, but he was twenty-eight and he'd already outlasted his mother's patience. He'd hoped he might meet someone on his own, but it hadn't happened. And his parents wanted him to marry a traditional girl, even though Umesh was a modern man.

He wanted someone pretty and accomplished, but who knew what women his mother had selected? Would the beautiful Anjali be among them?

Umesh shivered. No, he wasn't nervous at all.


Anthony
Quit yer bellyachin', he thought, his father's voice still in his head after all these years. So what if he hated his job? The pay was good. Not everyone got to live their dream. His dream was drinking beer and watching baseball, so no chance of making a living there.

If he had a car, he wouldn't have to ride this goddamn train. And if you was a surgeon, you wouldn't be going to Mrs. Sepka's to fix her toilet.

But there was a game on tonight, and Billy was coming over with a six-pack. Suddenly, things were looking up.


Lainie
It was just after eight o'clock, but Lainie was already drunk. She sat in the back left corner, her usual spot, and watched the other passengers' eyes slide past her. She used to be just like them.

Losing John had destroyed her. Five months she'd known it was coming, but that hadn't prepared her for the crushing grief that followed. Two years later now, she didn't want to die, but she couldn't figure out how to live.

Better to numb the pain and hope it would someday leave her.

Someday, she thought.

But today would not be when that happened.


Isabella
Isabella fingered the acceptance letter inside her purse. Medical school! It was everything she'd ever wanted.

She knew she had a hard road ahead of her. The studying would be intense, and then the years of internship and residency, and after that she still had to pass the boards. But it'll be worth it.

She was dressed in her most businesslike clothes now, on the way to interview for a loan. She hoped she looked grown-up, instead of like a kid going with her grandmother to the ballet.

And Illinois… She'd never been. But she couldn't wait to get started.


Teo
Abuela smelled like cinnamon, the most delicious smell there was. Teo's stomach growled as he thought about churros, but those were a Saturday treat, so he played with his toy car instead.

Down his leg and over the back of the empty seat in front of him it went. He imagined being a race-car driver, though "pirate" and Futbolista were still his favorites.

Abuela touched his cheek and offered him a slice of mango. "Tres paradas," she said. Teo could count to tres.

He watched treetops go by as the train rushed past. This is the world the birds see…


Yuri
Yuri's duffel bag held everything he could carry.

He'd hoped for acceptance, but he hadn't been surprised. There was no room in his parents' culture for boys like him.

"When did this happen?" his mother had asked, but Yuri always knew. He was just tired of hiding, and Andrei's smile had made him brave. Even if his parents never forgave him, he was still running to something instead of away from it. Andrei's house was just a few miles down the track, now.

Down below, sunlight glinted off car windows, a stream of stars pointing the way toward Yuri's future.


--/--

If you enjoyed this story, please vote for it along with any other favorites here

Friday, June 20th, 2025 06:39 pm
LJIdol: Wheel of Chaos
Prompt: Quality
25-06-20


I was diagnosed when I was about thirty-seven/eight years of age with (what is now generally called) ME/CFS (Myalgic encephalomyelitis/chronic fatigue syndrome.) At that time, I had been ill for eight or nine years (probably much longer) with a long list of symptoms and though the catalog of symptoms has been changed for political reasons a few times since, mine have pretty much stayed the same. Political? Well, funding for research is hard to come by so changing the list of symptoms to align with some other similar disease makes the money flow a little easier. Long-COVID is our most recent companion disease.

ME/CFS is what is termed an invisible disease. That just means most of the time we who have it don’t look that ill, or disabled. I have been accused of malingering, just being lazy, faking it—whatever. Even had a doctor tell me once that while she believed in Fibromyalgia she did not believe in CFS. I really liked her, but did not like that.

So, Fibromyalgia? I also have that and MCS, Multiple Chemical Sensitivity. The trifecta! Sorrows come not single spies but...never mind.

What does that have to do with Quality?

Well, in Canada we have this little thing called MAID: Medical Assistance in Dying. So, there is a lot of talk about the Quality of life in this country. More, I imagine than in other countries where they don’t have MAID. Not too long ago there were two women with MCS who opted for MAID because it was too hard for them to find a safe place to live without exposure to chemicals their bodies couldn’t tolerate. My heart breaks for them.

Quality of life means different things to different people, obviously. Once, when I was facilitating a support group for those of us with any of these diseases there was a couple who came once, one had one of the above and the other didn’t. The other’s main complaint was that they couldn’t go dancing anymore. To someone like myself who has a very restricted life and really doesn’t go out except for medical appointments, once or twice a year to church, or on very rare but special occasions, lunch with a friend and who tries to be open minded, I had a difficult time wrapping said mind around that. But, for that spouse it was a hardship. Something they had shared that they could no longer share.

Recently, my pastor asked me to write an article about what it was like to live with ME/CFS. I said I would think about it but wouldn’t promise anything. Truth be told, I was stumped. Living with this disease takes all my energy, I think about how I’m going to feed myself, what I’m going to feed myself, when I’ll be able to shower and will I be able to wash my hair when I do. Everything I do takes a lot of thought and planning and prioritization. And there are some, I’m sure, who would say I have no quality of life. I disagree.

I can still love, feel joy and laugh, and reach out (by phone) to friends. I can still pray and write and read and knit and do many things that are gentle, slow activities that I enjoy enormously. And as difficult as my life may seem, I’m not interested in the alternative.

Back in the Fall, my doctor put me on a new medication. It was a disaster. I explained to her that it hadn’t just put me back a few weeks, months or even years, it had put me back decades in my journey to recovery. As heartbreaking as that has been, ending my life is just not an option. I suppose it comes down to how we each define the quality of our lives. If I can still comfort a friend going through a hard time, if I can still pray for those who are suffering, if I can still offer a little hope through peanuts and water to a squirrel or two, or kitty-sit the pastor’s cat for a week or so, I have purpose. I have joy. I choose life.

Deut. 30:19.
Friday, June 20th, 2025 04:03 pm
 THE CONSULTATION

Pinocchio needed an attorney for an unusual problem; however, this was not what he was expecting.  The office was hard to find – it was in a field behind Old MacDonald’s farm.  In front was a sign: “Don’t Get Beat Use Pete!” The office was small, sun-bleached, and needed paint.  There was no receptionist, so Pinocchio opened the door and went inside.

The attorney himself was not exactly confidence-inspiring.  He had big ears, a funny nose, and oddly shaped eyes.  Still, Pinocchio was in no position to criticize, with his large blue bow tie, alpine hat, and funny nose.

“Peter Rabbit, animal-at-law,” Peter said, extending his paw.  “Welcome to my hutch.  I’m fully licensed by the Court of Grimm.  How can I help you?”

“I heard you were the highest quality attorney in Fairy Tale Land.  And I need the best.  I want to sue Walt Disney.”

There was a long pause while Peter nibbled at a carrot and brushed some hay off his blue jacket.

“That may be difficult,” Peter finally said.  “He’s dead.  If you want to sue someone who’s dead, you need an attorney from the Poe Supernatural Court.  I can recommend Casper over in the graveyard.  He’s very friendly.  Be sure and tell him I sent you.”

“They made Disney a hologram a couple of years ago.  I’m a puppet made out of wood.  If I can be sued in the Grimm Court, why can’t I sue a hologram?”
                                                                               
Peter scratched himself with one of his hind legs.

“I’ve handled a lot of weird cases,” said Peter.  “I just got a settlement for Cinderella for injuries in her goat yoga class.  I represented Snow White in a sexual harassment suit against those Seven Dwarfs.  They kept whistling at her while they worked.”

He paused to scratch some more and think about the problem.

“Grimm Court jurisdiction extends to fairy tale characters,” explained Peter.  “That covers a lot of ground, but Walt Disney, hologram or not, was never in a fairy tale.  You were.  Even if you were a real boy, you still would have started in a fairy tale.

“You aren’t covered by human courts, so perhaps I can argue for diversity jurisdiction.  It’s never been tried before, but it just might work.”

Peter put down his carrot, stopped scratching, and his ears perked up.

“What’s your problem with Walt?” said Peter.

“He changed me!” said Pinocchio.  “He sanitized me, made me cute, and turned me into some idiot song and dance puppet.”

“Not unusual for Disney . . .” started Peter.

“I was a scoundrel!  Even Geppetto hated me and called me a wretched boy.  The first thing I did after he carved me was to steal his wig!  At one point, Fox and Cat hanged me from a tree.  I’m tragic, not loveable – I’m supposed to be a warning, not some twit.   Sure, I get saved by the Blue Fairy and could become a real boy, but I was mean and cruel.  Just ask the Talking Cricket – if you could.  I squashed him.  Instead, I was Disneyfied, just like all the others.  This has to stop!”

“I know what you mean,” sighed Peter.  “I’ve been made into cartoons and even computer-animated.  That was the worst.”

“Then you’ll help me?”

“I don’t know.  Disney has more lawyers than Old MacDonald has carrots.  But they can’t practice in the Court of Grimm.  They have to hire a fairy tale attorney and no one would work for Disney.  However, one of their attorneys could be written into a fairy tale, but that lasts forever.”

“But then they’d be on our turf,” said Pinocchio.  “And we could re-write them the same way Disney changed us.  I don’t think they’d like that.”

“No,” said Peter, his ears standing straight up.  “I’d hop circles around them.”

“But that’s not the only problem,” he added.  “There’s also copyright law.  Disney owns the copyright to the Disneyfied you.  Copyright law protects the creator, not the character.  The real you isn’t protected.  Disney could do whatever he wanted, and he created a likeable you.  No one would buy Pinocchio merchandise when you are, to be honest, you.”

“But they’ve stolen my soul and turned me into something I’m not, just to make money!” yelled Pinocchio as he pounded his fist into the wall of the hutch, cracking the old wood.

This outburst startled Peter.  “Now I can see the puppet who squashed the cricket,” he thought.

“Calm down,” said Peter.  “Here, have a carrot.”

Peter hated having to tell characters who wanted his help that there’s nothing he could do.  Some attorneys would take the case just for the fees, knowing that there was no chance for success.  Peter was not that kind of lawyer.

“I don’t know if this helps,” said Peter, “but you’re not the only character who’s wanted to sue Disney.  Peter Pan, Cinderella, even Prince Charming have come to my hutch, and I’ve had to tell them what I’m telling you.  Disney owns Fairy Tale Land and there’s nothing we can do about it.  Most of them just give up and work for Disney.  It’s not a bad life.

“It’s also too expensive to sue Disney.  I don’t work for carrots and no one except maybe Rumpelstiltskin has that kind of money.”

Pinocchio visibly slumped.  If he had tears, he would have cried.

“No one likes to hear they have no case,” Peter thought.

“Look,” he said, “you’ve got a choice none of the others had.”

“What’s that?” Pinocchio asked despondently.

“Go find the Blue Fairy.  Transition into a real boy, and get out of Fairy Tale Land.  It just isn’t what it used to be.”

“But how can I leave it behind?” Pinocchio said.  “Never see the Enchanted Forest again?  No more talking animals?  It’s just too bleak.  I can’t give up without a fight.  I’ll get your fees and I’ll be back.”

Peter saw Pinocchio’s nose start to grow.

“He’ll never be back,” thought Peter.

Pinocchio left the hutch, but not in search of the Blue Fairy.

“I’ll find Geppetto and see if I can patch things up with him,” he thought.  “He carved me -- he’ll know what to do.”

Geppetto lived far away, on the other side of the Enchanted Forest.   It was going to be a long trip, but at least he wouldn’t have to talk to any lawyers.

Peter Rabbit hopped out to Old MacDonald’s vegetable patch to steal some more carrots, singing Ee i ee i o.  He knew there’d be more clients.  There always were.

___________________
Friday, June 20th, 2025 02:31 pm
LJI Week 1: Quality
June 15 marked the ten year anniversary of working for my current employer. This was both gratifying and slightly amusing to me because of a comment made by one of my former coworkers when I left my previous job.

"An accessibility job for a large mainstream company?" they reportedly scoffed. "That'll probably only last a year, if that long."

Hello, still here!

Oh, don't get me wrong, it's definitely been a bumpy ride at times. Our team has always been that troublesome puzzle piece that company leadership wasn't quite sure where or how to slot into their operations. It was a bit like being part of a jigsaw puzzle where the assembler could change a piece's location, but also its size, and shape, and name, and overall purpose. And, don't let the default past tense of storytelling fool you, they're still at it!

The disadvantages to being that puzzle piece are obvious, but believe it or not, there were advantages too. For example, it meant I did the routine stuff like reviewing content to identify accessibility issues, but also worked with developers to design feature enhancements so that the content was easier to understand and navigate. Myself and other colleagues were encouraged to share our knowledge by responding to calls for papers at national conferences, and if we were accepted, got to travel to the conference and present are findings. Without a doubt though, customer research was one of the most interesting activities I got to participate in.

Of course, ten years ago, I didn't know anything about research or usability studies seeking customer feedback. When I was asked to help out with our first study, I sorta figured, you put together a prototype, showed it to the customer, let them play with it for a bit, and then asked a few questions. Easy-peasy! Yeah, not so much.

  • What are the research questions your study is trying to answer?

  • What prototypes or study materials will be shown to each participant?

  • Is there enough time to prepare the prototypes/study materials before the study is scheduled to begin?

  • Will participants need to sign nondisclosure agreements in order to view the prototypes/study materials, and has legal approved the language for those agreements?

  • Do you plan to compensate participants? If so, how much will each participant receive? Have you secured funding for the compensations, and if so, for how many participants?

  • Where will the study sessions take place, and is there a fee to use that space?

  • How much time will be allotted for each session?

  • How do you plan to recruit participants for the study?

  • Will any study participants be less than 18 years of age? If so, have you written a parent/guardian consent form? Has legal approved the consent form language?


You know that old Star Trek joke about the different management styles of captain Kirk verses Captain Picard? With Kirk, the strategy with a planet was beam down and poke any aliens with a stick, and if it was another ship, "Fire phasers!" Picard's strategy, no matter what was in the offing? "Lets hold a meeting."

Yup, you guessed it, I was on Picard's ship. So many meetings!

If you're reading the list of logistics above and thinking to yourself, "Dude, where's the fun?" I don't blame you. The answer was, in the beginning, I didn't have to worry about most of that stuff. I got to bounce potential research questions around with other team members, and then, once we had nailed down what we were trying to discover, I helped write the research protocol. The protocol was important because when you're conducting a usability study seeking feedback, the golden rule you're supposed to follow is to not bias the participants. The prototypes or study materials should be evaluated the same way by every participant, and one of the ways to ensure that consistency was to write a script that would be read in every session.

Now, what about the prototypes or study materials? Should you show those to participants in the same order every time as well? If you're like me and said, "Yes," I regret to inform you that you're wrong.

Think about it this way. You're participating in a research study lasting an hour and a half and looking at three different prototypes for the researchers. By the time you reach the third prototype, the likelihood is that you're going to be getting tired and imagining how nice it will be when the session's over and they stop asking you questions. If I always presented the prototypes in the same order, prototype number three would probably get a pretty raw deal. So, as researchers you counterbalance or change the order of items being evaluated.

Yes, it was a lot to keep track of, and it did get just a bit tedious reading the same script to six or eight participants every day during the study, but the payoff was being able to meet and speak with people with no filters in-between you and their opinions. The hard part, if you can believe it in this age of social media where people seem compelled to find fault with every little thing, was convincing participants to answer honestly and in depth. "We want to know what you like and what you don't like about each prototype, and you won't hurt our feelings in any way by telling us what you think about them."

There were typically three or four of us in the room with a study participant, one person reading the script and asking questions, and the others observing reactions and taking notes. We encouraged participants to "talk through" their experience while exploring a prototype, and I imagine they sometimes may have felt as though they were under a microscope. If they had a pensive expression or made an unhappy noise, one of us would invariably say, "Could you please share with us what you're thinking right now?"

It was time consuming, and exhausting, and while a study was going on, we'd barely had time to grab a meal in-between sessions. Is it weird if I say I miss the experience?

The last study I participated in was during the summer of 2022 at a conference in New Orleans, just after the July 4th holiday. We all wore masks during each session because COVID was very much still a thing. While venturing out for a late dinner one evening, a coworker accidently led me into a hole in a New Orleans sidewalk. Before the conference was over, we had to push the abort button and head home because everyone on the research team, except me, caught COVID. And finally, when I did arrive home, I decided to self-quarantine in a hotel for a few days, just in case I might still be a carrier of the dreaded virus.

Yeah, even with all of that, I still miss conducting research studies.

Dan
Tags:
Friday, June 20th, 2025 11:16 am
The museum had lots of gorgeous art from all over Asia in lots of different media. I've never seen Indian animation before. The drag queens were a lot of fun to watch too, I only wish my friend had shown up. He texted me that he was too tired. Also I have to remember to bag my own food next time I go there, the shrimp veggie rice noodle thing I had was tasty but much too overpriced.
Friday, June 20th, 2025 07:25 am
He’d been sick for a week. Summer cold they called it when he was a boy, but he didn’t think it was hay fever. What would he have been allergic to? Mold and dust? They’d mucked out the barn late, a mid-spring chore but time had wandered away from them and it was nearer to summer. The horses had already been turned out into the lower forty, hock deep in an abundance of growth and greenery, noses hidden in carpets of bluebells.

The barn took the both of them two days and just after that he’d fallen ill. Sick as the proverbial dog. Racking coughs, lungs that sounded like cedar being kindled. She was fine as houses, and they hadn’t been to town nor had a customer up from town for the mill. But he couldn’t breathe. Literally, figuratively, the physicality of inhalation and exhalation becoming an emotional toil. His lungs didn’t hurt; they were just not working the way they’d worked for the entirety of his life. She’d teased him good and hard about it. He was two decades her senior and he allowed the ribbing, deciding it was a good-natured lambast, but alone thought slantways about the distance measured by an ageing body and knew at sixty-eight he was old and at forty-seven she was not. Or not near as.

But he didn’t couldn’t spell out in words the extent of what he was experiencing. Later realizing not telling her was fear borne from a deep childlike belief that he could possibly jinx the very ability of his body to keep him bodied, ensouled. He tamped down his symptoms, dismissed the idea of going into the clinic. Waved away even a hint of diagnostic concern.

Naming a thing doesn’t always give the namer power. Some things acquire a name, and the power becomes all theirs, monstrous, overbearing, overarching, made real and whole.

The first sense of hardening, something lodged, something stiff inside his chest had woken him out of an already bad sleep and came at him with an existential dread so fathomless that he knew in those darkly pre-dawn hours that God had reached inside his body and touched the unseen organs toiling in their mysterious viscera at keeping him earthside. He knew he had been beckoned, felt that finger quirk within the twinned grey lobes, filters of the very air itself. A whisper come home son.

But he didn’t. Heed the call, respond. In another aeon without medical choices he would have acquiesced, quickly bent a knee to such a godly mandate, and within the year dutifully laid his stoved-up body down and not gotten himself back up again. He was astonished at how his corporeal self, pavlovian began to slaver at the command of fate.

It was hard work, to flee, to turn away from the lure of the abyss, the echo coming back emptied of his pleas, hauling great mouthfuls of air into his hardened lungs, willing them to soften beneath his will, to generate as though it were an act he understood or had any sort of control over oxygenated blood. His mind committed to a marathon, but he learned the body does not work that way.

Acquiescence. An exam, then labs, then quiet pronouncements from white coated analyzers.

ILD. Interstitial Lung Disease. There came the naming, the christening he’d gone to such extremes avoiding. He did not feel empowered. Identification did not lead to compartmentalization. The panic of it made it more difficult to breathe.

Accusations or recriminations were never part of the conversation in the sterile examination rooms. Neither courtroom nor pulpit. Regrets only his. All their probing and prodding, questions and answers.

But. Had he done this to himself?

Cemented his own lungs? The bronchus, bronchioles solidified inside the yeasty lobes. The deflated sacs, gummed closed. He wasn’t a smoker, leaf or grass. No childhood asthma, no rheumatoid arthritis. His heart was steady, his arteries clear. Occupational dust or fibers.

Years at the sawmill, whittling a figure of a man close to earth, organic and respectful of the mighty conifers, the broad-leafed hardwoods. Riven down to the heartwood, the splitting and the milling. The board feet of his daily grind, the blades, the growing mounds of sawdust, the smells and soils of a hard day’s work. The labor of the felling and the bucking, the chain dragging, and the ripping. The packaging, boards and stickers, and the redolent incense. The perfume of his own wood lot, his own lumber yard. It lined the inside of his sinuses, and he relished it. Tasted it on his tongue, scraped it out between his molars.

Fibrosis, necrosis, pyrosis.

One year. Into the second wearing oxygen but his strength was sapped. His vision swimmy, his ears ringing with the labors of his breathing.

Double lung transplant.

Now that was a thing to give a body the shakes. He quivered like a strung bow as charts and diagrams were shown, then the contractual agreement and he wanted to make a dark joke but could read the room. These men did not see themselves on a side other than that of a clinical, mathematical God. This for that. One life for another. Interchangeable beneath the skin that pretends a difference between one or the other. All scientific progress and supposed presupposed human gain. He signed and jested silently, inside his head about blood and souls bartered for a bit more of this and a lot more of that.

The waiting and the worsening. The dizziness brought on both by his body and his thoughts.

The loneliness ached him more than the faltered breath, the straining ribcage, the sinking realization, the bartered understanding. She tried to comfort or strengthen him up by relating the stories of her two births. It’s like birth, she said. It’s entering a room in which there is only one exit. He could not grasp the concept. For him the room was not a room, but a box fitted to the width and breadth of his shoulders, the length of his skeleton head to toe.

After after afterwards. Sitting wrapped in a blanket he’d pilfered from the months’ long stay at rehab on a rocker on the deck he had built when a younger man a different man a man breathing through his own lungs staring out across the land he owned had bought for her wanting not just one thing but all the things for her for her for them such a short allowance we are given he measured the length of a thing against the weight of a thing and wondered. And could simply not decide.